Advocacy & Consumer Rights


PPMD Advocacy Conference

Parent Project Muscular Dystrophy Advocates Urge Continued Funding in Washington

Nearly 80 parents, grandparents and relatives of boys with the most common form of muscular dystrophy attended the Parent Project Muscular Dystrophy 13th annual Advocacy Conference in Washington, D.C. in late February.

CEC Joins White House Dialogue on Education of Students with Disabilities

Council for Exceptional Children (CEC) members met with the White House Domestic Policy Council and the U.S. Department of Education Office of Special Education and Rehabilitation Services (OSERS) to discuss initiatives related to children and youth with disabilities and their families.

Mike Savicki

9-Time Gold Medalist and Multi-Sport Wheelchair Athlete Named Spokesman for National Mobility Awareness Month

Mike Savicki, a triathlete with quadriplegia, has been named spokesman for National Mobility Awareness Month, a new celebration in May that encourages people with disabilities to live active, mobile lifestyles.

CMS Announces Changes to PMD Demo Project

The Centers for Medicare & Medicaid Services (CMS) has announced major changes to its Medicare power mobility device (PMD) demonstration project.

The National Survey of Childrens Health

Report: 1 in 5 Households Have Children With Special Healthcare Needs

The Health Resources and Services Administration (HRSA) recently released a report comparing the health and well-being of children with special healthcare needs versus children without.

CMS Delays PMD Demonstration Project

The Centers for Medicare & Medicaid Services (CMS) controversial power mobility device demonstration project would impact claims for most types of power wheelchairs and all scooters in seven highly populous states.

Advocates Speak Out Against Medicare/Medicaid Power Wheelchair Demonstration Project

The plan or demonstration project, which goes into effect Jan. 1, will affect a wide range of power wheelchairs and all scooters in seven states: California, Florida, Illinois, Michigan, New York, North Carolina and Texas.

Conference of States Parties to the Convention

UN Celebrates People With Disabilities During International Observance

In the United States, organizations and communities came together to celebrate the mission of International Persons With Disabilities Day and increase understanding of disabilities worldwide.

National Council on Disability crest

National Council on Disability Report Outlines Solutions for Improving Equality and Increasing Federal Savings

National Disability Policy: A Progress Report assesses US disability policy and examines how emerging trends and government policies influence the quality of life of Americans with disabilities.

Kessler Foundation Seeks Employment Experiences From People with Disabilities

Research and advocacy organization celebrates Disability Employment Awareness month.

Mark E. Smith

Are Funding Cuts “Landlocking” the ADA?

Mark E. Smith of Pride Mobility Products Corp. discusses the ADA and funding for equipment.

Poll: Americans Like Medicaid as Is

Sixty percent of respondents say they prefer the current way Medicaid is administered.

Users First Joins Forces With United Spinal

Ann Eubank becomes VP of community initiatives for United Spinal.

VGM Advocacy Group Expands Social Media Networking

People for Quality Care joins Facebook, urges consumers to fight for themselves.

Advocating in Washington: Make Your Voice Heard

John Gallagher and Seth Johnson outline etiquette and tips for working with your House rep or senator.

What You Don't Know About Funding…

…Can Hurt Your Freedom of Choice

Learn payors' policies and what you can do to help yourself pay for mobility equipment.